Going to one of these websites will give you a wealth of information on SCI.
All of them are AMAZING websites with an abundance good information.
The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy. Their Paralysis Resource Center promotes the health and well-being of people living with a spinal cord injury and paralysis by providing comprehensive information, resources and referral services.
They also have a section with great A-Z Fact sheets and provide a FREE Resource Guide book to people who are newly injured.
United Spinal Association’s mission is to improve the quality of life of all people living with spinal cord injuries and disorders (SCI/D). Founded in 1946 by a determined group of paralyzed WWII veterans who advocated for greater civil rights and independence for themselves and their fellow veterans. Rejecting the poor treatment they received at their local VA hospital, they decided to form a support group. From these modest beginnings, United Spinal was born and has never lost sight of their grassroots beginnings to provide a voice to the disability community and to transform the public’s perception of wheelchair users. Today, United Spinal is the largest non-profit organization dedicated to helping people living with SCI/D.
The National Spinal Cord Injury Association (NSCIA) is the membership wing of United Spinal dedicated to improving the quality of life of people with a SCI. With local chapters spread out over the United States, the NSCIA has created a network of services & programs to help people with SCI.
The NSCIA publishes a FREE Magazine called Life In Action that is filled with issue-driven articles, and news of interest to the SCI/D community.
Care-Cure Community is a SCI chat room with thousands of members and discussions on a whole range of topics. You can ask candid question and remain somewhat anonymous in their chat room forum. This is one of the most powerful resources on the web for someone with a SCI. It is moderated by Dr. Wise Young and has a resident SCI Nurse, both of whom participate in discussions and can give professional advice.
CareCure has over 70 forums to discuss everything from Life to Legislation & Advocacy, from Sports and Travel to Pain, from Computers to Politics. Other forums like their Care Forum, New SCI Forum, Relationships and Sexuality Forum, Cure Forum, Caregiving, Equipment and Exercise Forums. Discuss it all!
UK based SCI resource center and chat room
Social networking site for people with SCI’s. Just like Facebook, but better.
This site is an informative resource for those living with a spinal cord injury or other disabling injuries or diseases of the spine. It is meant to be a "best of the web" site for SCI health and caregiver information. Lots of great info & links!
This website provides great information on SCI plus it has a forum providing peer support for those affected by spinal cord injuries. When someone suffers a spinal cord injury, there will be a wide variety of issues to cope with. Apparylzed fills you in on many things others leave out.
FacingDisability.com is designed to provide video-based information and support for people with spinal cord injuries and the members of their families. Connecting with the life experiences of others who have been down the path ahead of you often helps people find their own strength and support.
The Spinal Cord Injury Zone is a Spinal Cord Injury educational Knowledge Base. The mission of The Spinal Cord Injury Zone is to blog & archive important Spinal Cord Injury News and Spinal Cord Injury Information for education and awareness.
SPINALpedia is a social mentoring network and video archive that allows the spinal cord injury community to motivate each other with the knowledge and triumphs gained from our individual experiences. Check out their videos.
The Model Systems Knowledge Translation Center (MSKTC) summarizes research, identifies health information needs, and develops information resources to support the Model Systems programs in meeting the needs of individuals with spinal cord injury (SCI), traumatic brain injury (TBI), and burn injury (Burn).
The New England SCI Toolkit (NESCIT) is a collaborative effort between facilities providing spinal cord injury (SCI) rehabilitation in New England. This collaboration ensures patients throughout New England and beyond are receiving the same coordinated standard of care wherever they receive rehabilitation. Further, this Toolkit will aid in building capacity at facilities that may not treat patients with SCI often enough to have developed expertise.